Jahi Chikwendiu

Gail and McKenzie: A Great-Grandmother and Child

For Gail Ertel, a widow who has 11 grown children, the golden years are all about her 7-year-old great granddaughter, McKenzie, who is blind, autistic and has numerous other disabilities. The multi-generational family of two came together in 2001, the year McKenzie was born on the Eastern Shore of Maryland to Ertel's 16-year-old granddaughter. Ertel closed her home day-care business of 19 years and became McKenzie's full-time caregiver at an age when other people retire to quiet houses and well-deserved leisure. Gail Ertel struggles to pay for her own medical bills and those of her great granddaughter. Ertel's sense of stability was further unraveled this year when she was told in May that she was not eligible for a Medicaid benefit that helped keep her and McKenzie afloat -- $400 a week that Ertel had combined with her Social Security and McKenzie's disability check to make ends meet. Nationally, nearly 200,000 children 5 to 17 with disabilities are in the care of a grandparent, according to census statistics. 

  • Young McKenzie communicates and discovers using her sense of touch as she caresses the cheek of her great grandmother, Gail Ertel.    Ertel says schools have trouble coping with a little girl who has so many disabilities, so McKenzie has been homebound from school since 2008.  The great grandmother says she'll continue taking care of her granddaughter in spite of losing the major government benefit that kept them afloat.
  • There are moments when the family members interact in a soothing, loving manner.  When McKenzie was two weeks old, Ertel said her granddaughter asked her {quote}Nana, could you watch McKenzie?  I'm tired.{quote}  Since then, Ertel has had custody of McKenzie.  The girl was hospitalized 17 times in her first year.
  • There are other moments when Gail Ertel can just watch as her great granddaughter, McKenzie Campbell, throws a tantrum at their home in Woodbridge, VA.  The child, who cannot communicate using normal verbal communication, gets frustrated when she is not understood.  McKenzie has autism spectrum disorder and that the combination of visual and cognitive deficits has led to a significant developmental delay.  In several ways, the child's functioning is much like a toddler's.
  • At times, McKenzie pauses and seems to enter a world of her own.
  • Ertel tries to catch toys from falling as McKenzie pulls over a table at their home.
  • Gail Ertel tries to avoid being bitten by her great granddaughter, who is easily aroused into tantrums.  On a recent trip to the supermarket, McKenzie tried to climb out of the shopping cart. She screamed and cried. She tried to bite. Ertel decided to cut the trip short, but not before a fellow shopper cast her a long disapproving look.
  • Gail Ertel, reflected in her car window,  at the baseball field where McKenzie plays on a Little League team for special-needs children.
  • McKenzie Campbell, who is blind, autistic and has numerous other disabilities including limited senses of taste and smell, samples the texture of a baseball with her tongue during the child's baseball game in Woodbridge, VA.
  • McKenzie Campbell's baseball coach carries her around the bases after swinging the bat for her during a baseball game in Woodbridge, VA.
  • Gail Ertel gives her great granddaughter, McKenzie Campbell, a bath at their home in Woodbridge, VA.  Ertel's days are defined by the child. She bathes her, cooks for her, gives her medicine. She stacks blocks. Plays music. Walks her around the block. McKenzie sleeps four to five hours a night -- so Ertel does, too. She gets by with what she calls {quote}Navy showers{quote} -- five-minute affairs with McKenzie perched on the toilet while Ertel peers around the shower curtain.
  • The steady back-and-forth motion of the swing soothes McKenzie, who is easily roused into tantrums.  {quote}I will never stop hoping, I will never stop praying, and I will never stop teaching and trying to reach her,{quote} Ertel said.
  • One thing Ertel finds hard to think about is who will care for McKenzie when she becomes too old or too ill. That day seems a long way off, but Ertel said she hopes someone in her family steps in. {quote}I want to keep her happy and healthy and have her advance,{quote} she said.
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